Fighting Fibromyalgia. Literally looks like we had a fight today lol. So tired from lack of sleep, pain, and everything else that goes with this illness. Have had this black eye since last Tuesday night when the door of my truck whacked me in the face. This is what happens when you try do more than 2 things a week with Fibro. Feels like I’ve just been hit by a truck lol. Sharing to remind myself that I need rest more and never give up. #Fibromyalgia#fightingfibro#fightfibro#rest#nevergiveup#breathe#sickgirl#sickgirlsclub#beingsensitivesucks
Learning to forgive is what truly makes your heart warm
We all want to be wrapped in the warmth hand of life and feel life’s true love. That’s true. We all want to have a taste of the purity of life and live without worries or any iota of it. That is possible, but not without a price. That price is that you must learn to forgive. To read the rest of the article visit: www.aimeereese.com/single-post/2018/01/16/Learning-to-forgive-is-what-truly-makes-your-heart-warm #aimeereese#rebootrevitalizerestore#health#wellness#fibromyalgia
Since #spoonies and people with #chronicpain only have so much energy, another good one would be to make them a meal! It doesn’t take much to make a #chronicallyill friend or family member feel hopeful and supported. Try these tips next time you can!
Winters can be tough. Cold weather. Lack of sunlight. Stressful commutes. These are the type of things that can impact both our physical and mental health. It is important to take the time to listen to our bodies and make positive lifestyle adjustments.
Loving how well my new @vogmask matches my “cotton candy” beanie from @moderndayhippye ☺️I really haven’t been feeling great, so I’m working on celebrating the little things!
I’m trying not to spend too much time worrying about why I’m feeling so bad, but it’s hard. Despite stopping IV antibiotics, my eosinophils have been continuing to rise and my doctor doesn’t seem to know why. My eosinophils were 3125 this week. Normal is between 15 and 500 cells. Eosinophils are a type of white blood cell that fight infection and stimulate an inflammatory response, so it’s no wonder I keep waking up feeling puffy and inflamed. Really hoping some new test results will bring answers and that we can get a new treatment plan going soon! 💚
Y’all, I’m tired. So I’m curled up in my favorite chair with a heating pad on my aching back watching the shadows are casting on the walls. ⠀
In the quiet moments like this, it’s easy to forget about the aches and pains and sadness and guilt. ⠀
It’s enough just to curl up with a warm blanket and a sweet orange cat.
Muscle Balm Customer Reviews: "I have tried over the counter " muscle relief" that smelled horrible and did nothing but this not only smells WONDERFUL, it feels great!!!" "I have tendentious in my left arm and this balm really relieves the pain! It helps me so I can’t relax and sleep better." "I have the start of arthritis in my hands and used this balm, within minutes I felt relief. It is wonderful. I forgot what it feels like not to have that throbbing ache. Thank you Kathie. What a wonderful product, cant wait to try the rest of your product line." "love this stuff......will sleep better tonight! smells great and really helps lower back and neck soreness.......thanks so much!"
Day 16 (16th Jan)
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The Good - I made it out of bed today and tried to wear something nice to make myself feel better. We had friends over for some D&D, after which we decided that with some of the group we will start a new Star Wars campaign using the only prebuilt story for Saga Edition. That's quite exciting. It'll take a little work from me but it's not as hard as making up a story from scratch!
.. . .. .. .
The Bad - Stomach and chest pain woke me up in the night and in the morning. I've managed to sit on the sofa but I've also been a big ball of pain. Needed morphine, and also an ice pack when I tried to straighten my leg at one point because my knee hurt so badly....my wrists and hands have been on fire again in almost all the joints, the endometriosis has been making me cramp like nothing else, I'm even battling with a sodding headache....
.... . ....
The "Ugly" - well here's me looking nicer to feel better about myself. Wearing yellow feels really weird but this dress is cute and I love the gothic sleeves I was given for Xmas too. Sometimes nice clothes can lift your mood a little bit. If I had more energy I might have used makeup too but it took me til 3pm to make it out of bed.
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Aimez-vous aller à l'épicerie?
Moi j'aime aller voir les épiceries, regarder s ce qu'ils ont mais aussi de goûter à des aliments différents de chez nous.😊
Je crois que la bouffe me mène.😂 Aujourd'hui, j'avais à faire de la préparation pour bien manger dans les prochains jours pour environ 2 jours car les frigos sont petit et tu peux aller à l'épicerie et ne pas avoir un certain légumes ou fruits mais d'y revenir en soirée et il est là. Comme vous pouvez remarquer j'ai relevé le défi en posant questions et en fouillant partout.
Il doit me rester du militaires en moi 🤣 mais surtout de la débrouillardise.
Hier, quand je suis arrivé, je vous cacherai pas que j'étais un peu découragé ou j'avais trop de pensées limitantes au niveau de la bouffe pas parce que à la première vu tout était différent. Mais dans le fond j'était fatigué et je ne voyais pas claire.
Bien non, j'ai trouvé plein de choses à l'épicerie.😊 Et le tout m'a coûter 16$ canadien. Maintenant, je vous dirai combien pour combien de temps ça m'a duré.
Je vous souhaite une belle soirée!!!
Do you find yourself in similar negative situations over and over again or find yourself thinking how did I end up “here” again? This happens when we don’t take the time to process and heal from pain and past offenses. Want to feel better, give yourself permission to deal with it!
Something New...today I tried 100% Celery Juice for the first time thanks to a post from @medicalmedium, with a side of corn grits topped with watermelon, pecans, and coconut sugar. Being in constant pain causes my blood pressure to be elevated at times, but today it was 117/79!
👉🏻 Many of you have asked me if CBD oil helps with anxiety? 🤔 It has personally helped me with anxiety and migraines.
I just read this wonderful post from Angela in our group... ✳️”I ended up with extreme anxiety a few months back and I would have panic attacks many times while I was driving and I had general anxiety daily. A few times my panic attacks were so bad it got to the point where my legs would go numb, my heart felt like it was going to beat out of my chest, I had a hard time breathing and I felt like I was going to pass out. The anxiety I was having completely disrupted my life, the things that were a normal part of my life were now hard to do and I started to feel down and helpless. Around this same time I was diagnosed with IBS which added to my anxiety. In searching for a way to deal with what I was going through I found CBD oil and decided to give it a shot. I have been taking CBD oil for about 2 months and it has given me my life back. I have no more anxiety, I have not had any panic attacks, no more IBS symtoms, I have very restful sleep, headaches that I used to get frequently are gone and I feel better than I have in years. I am so grateful for CBD oil!”✳️ ✅ www.cbdwins.com ✅
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Day 15 (15th Jan) - Late, because I was in bed all day.
.. . . .
The Good - it's hard to think of any good from yesterday. I guess Wez bringing back some treats from the bakery in town was nice, and the bed was comfy?
. .. . . .. .
The Bad - everything hurt. My legs, back, shoulders, wrists, hands, and womb were in perpetual agony. I could barely get out of bed to use the bathroom and had to spend the day laying down trying to find any comfortable position. Sleep was off, appetite was gone, all I could do was lay there and watch Netflix. Which made me feel awful because there's things I both want and need to do but I couldn't do them, my hands were in so much pain there was no way I could have done anything on my laptop. Couldn't even use my phone.
. ... . . ..
The "Ugly" - here's my eye from today. The exhaustion form yesterday has not helped. I wanted to sleep it off but I couldn't. . .. . . . .
Stressful couple days with the house being almost ready to be starting the build and getting everything in order but still being in limbo ughhh makes me not sleep and when I don’t sleep, I go downhill spiral REAL quick add in a wave of grief and you have a nice anxious day. After a huge huge attitude from a pse employee and saying I was given wrong information when I wasn’t and him looking at me like I’m dumb I need a time out. Oh and I got called a grandma today too! So on the way home from running around looking dumb, being tired, in a lot of pain because of the stress and lack of sleep, I stopped at the beach with some blackberry Kush.
Don’t know about you, but my Instagram feed is FULL of amazing, gorgeous pictures, of people trying to project a “perfect” life! Well no, sorry, but I’m here to make a stand! I don’t bake, I don’t even make meals because I’m in agony when I stand - my amazing fiancé makes meals and they are tasty but nowhere near Instagram-ready!! My house is generally a shit hole even though I set everyone chores to help out, within seconds it’s like a bomb has gone off! My kids don’t have nice near perfect hair and perfect cute clothes with cute smiley poses - they all have my half curly, half straight, all frizzy mess of hair, their clothes are usually all too big for them because “they’ll grow into it”, I need to eke these clothes out a LOT - daddy dearest doesn’t believe in maintenance apparently...🤬 But I digress...the kids all have issues, as do my rescue cats (🤷♀️), so most are usually hissing, jumping around, being mental - and yes I DO mean the kids along with the cats! So I don’t even TRY for Instagram perfect - I don’t want anyone looking at my pictures and wishing they had that life! 😂😂 I wouldn’t wish that on my worst enemy!
So I thought I’d start with my #InstagramHonesty pictures - unedited, just as it really is (although with some editing and filters it would probably look really cool! 😉), and here’s my first #InstagramHonesty picture. The REAL bedside table of a chronically ill mum! The meds are just what I need to get through the long nights - balm for my migraines, painkillers, codeine, antisickness pills for the nausea I feel all day and night, supplements to help me sleep which don’t work as I’m usually up until 6am or all night and morning, magnesium for when my legs start to spasm painfully, snacks because going to bed at 11 and staying awake all night after nothing since tea time is hungry work, and some pills require me to eat before I take them. A big bottle of water as I am always super thirsty (side effect of tablets), and to take tablets with. Erm....antihistamines because I’m allergic to cats 😳 Yes, I have 13 cats, yes some sleep upstairs on my bed..🤷♀️
So let’s see your HONEST pics! You’ll feel SO much better!! 😂
Well I can happily say that this weeks CBT was an altogether better experience.
I got there and back with only one hitch and also had a really positive session all about pain and how mindfulness can help with lessening the suffering.
I also left there with a real can do attitude. I found myself internally repeating the mantra of “ you got this “
I am going to get back to work.
I am going to have the relationships I sometimes crave.
I will further my education.
I will find a way to better cope with the pain and fatigue.
I’ve got this !!! P.S SO DO YOU 💪🏻💛⭐️
I had such a SURREAL experience last week!!! ✨
Teresa had an appointment in Kerrisdale and I asked her to bring me along so that I could look into a couple of treatment centres in the area. Just before we left, I also asked her to take me to West Wood Organics (an amazing little organic grocery store in Kerrisdale) so I could fill up my @hoochybooch growler and have a stash of kombucha at home to drink when my nausea hits me. The moment I stepped into @wworganics a lady walking up the aisle looked at me and exclaimed, "I KNOW YOU!" 🌱
I was so taken aback and confused about what was going on because I'd never been to this store before and I definitely hadn't met this lady either. 😂
Well, it turns out that the lovely lady who recognized me was Jin, co-owner of West Wood Organics and she knew my chronic disease story from following me on @instagram ! 😮
She said the kindest things to me and apart from the whole exchange being totally surreal, it was so humbling and so encouraging to know that through being vulnerable and sharing quite private aspects of my life and struggles, I managed to have an impact on someone and made her aware that supposedly young, healthy-looking people walking around could be facing quite challenging health battles and you'd never know it just by looking at them. 😊
In that moment, I became very aware of how powerful social media is and that despite its many negative components, one absolutely amazing facet of it is its ability to foster CONNECTION and COMMUNITY and generate AWARENESS of important issues amongst people who've never met face to face! ✨#feelinggrateful#newfriends#organicgrocerystore#kombuchalove#vancouversmallbusiness#community#chronicdisease#invisibleillness#spoonie#spoonielife#centralsensitivitysyndrome#chronicpain#mecfs#fibromyalgia#allodynia#ibs#ic
Where are all the spoonie men??
There is supposedly 43% of the UK in chronic pain, that's just under 28 million. Just let that sink in, half of our population. In the US there are 100 million chronic pain sufferers. However something I found little on and I mean barely anything at all, was info on the male spoonie.
We have great advocates for male mental health such as Stephen Fry,Jared Padalecki and Jim Carey but none for chronic illness. There are men out there suffering in silence because they feel it would diminish their facade of strength. It took me a while realise this was bullshit because I was in this rut, not wanting to admit what was wrong because it made me feel worthless. I thought if you couldn't work and lead a normal life you were inferior. My boyfriend helped me realise otherwise. I learned to improvise with what I have and now hope to influence even one person to get help, free themselves public opinion and realise their potential despite their situation.
Depression rates in Australian adults with chronic pain are four times higher and one in five suicides are linked to physical conditions. Something tells me that this might have something to do with a lot of people not speaking out, specifically men. I read an account online of how one guy described himself: "Without these two physical abilities, my confidence has more or less evaporated into thin air. I no longer feel like a man. I can't pursue healthy relationships right now and am withdrawing into a lifestyle of isolation."
When I read this I was really sad. If we didn't have the social constructs that we do, men with chronic illess wouldn't feel this way. I feel like this is another stigma we need to break. Having a chronic illness or physical diasabilities is nothing to be ashamed of. Life gives us lemons and we get to decide to make something from them or let them go bad. The mental health stats alone are enough to show the urgency and need for men to have a safe, accepting and empowering platform to speak out. There is a massive community here ready to welcome you with open arms, all you have to do is take the first step, we're all in this together. #nomanleftbehind